No apologies necessary, in my opinion. You did not mean anything negative and you did not know. I just wanted to explain the other side.
No apologies necessary, in my opinion. You did not mean anything negative and you did not know. I just wanted to explain the other side.
I can see that you did not mean anything offensive by it. However, I have had similar things happening to me (misdiagnosis of autism so my parents did not have to take responsibility for tramuatising me) and I might have responded similarly.
When someone imposes a diagnosis on you that is wrong and does it for selfish reasons, when you are a child, it is very harmful. It hurts your feeling of self worth to the core and makes you constantly question yourself and who you are. It takes a lot of strength to stop the selfdoubt and finally conclude that you do not have autism and that what you feel and think is correct and not what you have been told all your life by the people you were supposed to be able to trust. That is really a very difficult thing to do, because the anxiety that something is “wrong” with you after all is always there. It takes courage.
If you have been struggling with questioning yourself in this way and if you state that you are not autistic after all, then it is difficult to deal with a response suggesting that you might be wrong. That is almost painful.
I know that you did not mean it that way. There is no way you could have known if this is something you have no experience with. Also, I cannot say something about why someone else responds in a certain way. I might be wrong about that. However, when I read your question, I immediately got quite triggered as well. I guess I just wanted to explain where a response like this can come from in some cases.
Are you still in that situation or do you mean that that happened in the past? For me it got better once I left home. Although I was still in contact with her. Now it is much better, because I only occasionally have contact with her and only via text. It took me years to get there, but I did. I hope you do too if you have not already.
The same thing happened to me. I did not know it is a common thing! I was told I am autistic, but it turns out I have CPTSD. I think telling me I was autistic it was just an easy was to blame the ways in which I responded to being traumatised on me again.
I thought I was the only one! I really did not know that this is something that happens more often.
My mother managed to convince her psychiatrist to diagnose me with autism when I was 13. He told me that I had autism and that if I did not get treated, I would be alone forever and I would never be able to make friends. He also called it a handicap. No treatment was started, there was no help or anything after that. The psychiatrist told me and I never saw him again. My mother told everyone around her I was autistic and they all felt very bad for her, including me. I felt really sad she had me for a daughter and I hated myself for being who I was. I also was bullied in school and I thought it was my own fault because I was autistic and therefore I did stuff that made others bully me. I was the one in the wrong and it was just a response to that, I felt.
Turns out I am not autistic at all. Like, I had it checked out thoroughly and there was no doubt about it. I actually an able to emphasise with others better than average etc. I also have some really close friends, which I made once I was able to leave home. I do have CPTSD though from severe emotional neglect and psychological abuse.
It is so weird to see similar stories here. I know my social skills are fine, but I still feel insecure about my social functioning. I am always looking for stuff I might do wrong that confirms that I am autistic after all. I also still feel like something is fundamentally wrong with me and as if my existence is somehow an enormous burden for others. (This is not how I feel about autistic people, but it is how I was made to feel about myself by that diagnosis.) It is a feeling that is very difficult to change.
It is not. I am not saying people should not eat healthy or should not try to lose weight. I am just saying that pushing the oversimplification that for everyone it is just calories in vs calories out and that it is only about willpower is not correct. People should get the right help with losing weight and the factors that cause the weight gain or makes people not losing the weight should be addressed.
There is lots of scientific work on this. I copied some links from another comment I made.
For example, this is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.
This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:
The presence of beliefs and perceptions to support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.
[This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.
If you disagree, please provide some substantiation. I would be interested in reading it.
Thanks! I think you are describing what a lot of people experience. Weight loss is highly complex and by oversimplifying it, lots of people do not get the help they need and are made to feel bad about themselves.
There is actually quite some scientific work supporting what I am saying. For example, this is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.
This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:
The presence of beliefs and perceptions to support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.
[This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.
I am personally quite interested in work on obesity due to eating disorders. The reason for this is that I suffered from an eating disorder causing obesity for most of my life (fortunately, I do not have the disorder anymore). The constant pressure to just eat less and getting blamed if you fail, severely increased my eating disorder and I saw the same thing happen to others with similar issues. I know that this is anecdotal and not everyone that is obese has an eating disorder and not everyone with an eating disorder is the same. However, there is some limited evidence that weight neutral treatment of binge eating disorder has better outcomes. This and treatment for my CPTSD is exactly what worked for me.
I think for most people it is not the best advice. In most cases, there are many other factors at play than just willpower and “calories in vs calories out”. Obesity should be viewed and treated more like a disease, because it is. If you are interested, I can link you some interesting papers on this.
My experience is that if you spend time on providing sources, people usually are not interested in them and will not change their mind anyway. So I do not feel like it is worth the effort in every discussion. However, if you are interested in the work on this topic that substantiate my claims, then I am very glad to provide some links to some interesting articles.
This is an article in Journal of Obesity. It discusses the role of willpower and provides an overview of some of the research on other factors that affect whether people lose weight, such as metabolic compensation.
This is another interesting paper in the Irish Journal of Medical Science on patient’s view on obesity as a disease. I think the conclusion of this study aligns well with some of my claims:
In conclusion many people with obesity who agree obesity is a disease appear to have an imperfect understanding of the causes and treatment options. The presence of beliefs and perceptions that support the narrative that obesity is a choice, that choosing to eat less and move more effectively treats the disease and willpower is a principle determinant of weight loss maintenance may negatively impact long-term treatment. A belief that obesity is a choice will see prevention and treatment strategies continually focus on education regarding eating less and moving more, which may be suboptimal. Therefore, the narrative must change and align with the science regarding the biology of obesity as a disease.
[This] (https://www.sciencedirect.com/science/article/abs/pii/S0953620521000029) paper on weight regain also claims that it is not just about compliance with a diet, but that, amongst others, metabolic adaptation and changed appetite play an important role as well.
I am personally quite interested in work on obesity due to eating disorders. The reason for this is that I suffered from an eating disorder causing obesity for most of my life (fortunately, I do not have the disorder anymore). The constant pressure to just eat less and getting blamed if you fail, severely increased my eating disorder and I saw the same thing happen to others with similar issues. I know that this is anecdotal and not everyone that is obese has an eating disorder and not everyone with an eating disorder is the same. However, there is some limited evidence that weight neutral treatment of binge eating disorder has better outcomes. This and treatment for my CPTSD is exactly what worked for me.
I hope that this provides you with enough evidence to at least take the things I was saying into consideration. Please let me know if you find this useful. I have a lot more to share if you are interested.
Like I said, that is an oversimplification. There are many other factors that play a role, like the body working against the weight loss and lowering metabolism and increasing appetite, as I already discussed. There are also psychological factors and environmental factors that can have a big impact on weight loss.
Just ignoring those makes losing weight more difficult and means you have to do it entirely based on willpower. If you are one of those people for which these other factors play a big role it becomes very difficult to keep the weight off in the long term just based on willpower. This can be the case, for example, if you have an eating disorder, very high stress, untreated medical conditions (e.g. hypothyroidism), not enough money to buy healthy food, problems with the body signaling hunger or fullness, unsolved emotional issues, and so on.
Of course there are some people who just eat too much and who can just lose the weight easily by eating less. However, especially for people who are very overweight, these factors will play a role. They hear they should just eat less all the time and if they fail they are made to feel like a failure themselves and as if they have a lack of willpower. This is not the case. For them losing the weight is more difficult and the underlying issues should be addressed. You cannot just generalise like that and apply what works for you to everyone else.
Edit: please find sources for my claims in my comment below.
Thanks for saying this. I think the idea that it is just willpower causes so much unnecessary suffering. As someone suffering from an eating disorder and thyroid disease, I was getting a bit down reading all the “it’s just calories in vs calories out” remarks. It is so much more complicated than that.
It is not as simple as just calories in vs calories out. Your body has a setting point for what weight it thinks it should be. Once you are overweight, your setting point will be higher and your body wants to get back to that higher weight. It will start working actively against you. This might mean your appetite will increase and your metabolism will slow down. I think that is what you are describing here.
Trying to push yourself to lose more weight despite your body working against you can cause rebound weight gain if you are not able to keep the diet (which might become increasingly difficult due to increasing appetite). The most important thing is to keep a healthy diet that does not reduce your quality of life too much and is doable on the long term, I think. If you are struggling everyday, then it might be better to eat a little bit more and stay on a higher weight a bit longer to ensure that you will maintain the weight loss.
Maybe this is already what you meant. But the phrase “calories in vs calories out” and stating that nothing else matters made me want to respond. I think it is a popular oversimplification that causes a lot of unnecessary suffering for people trying to lose weight.
Eating fruits and vegetables might definitely help and it is in any case very healthy! However, people should not always expect to lose more than 10% of their weight in the long term (over years). This 10% can already provide great benefits for your health, so definitely try to lose that weight if you are overweight.
Often it is said that it is just calories in vs calories out. This is only true up until a certain point. For many people, after losing about 10% of their weight, their body starts to work against more weight loss. Their metabolism starts to slow down and their appetite will increase, making it more difficult to lose weight. It might make it almost impossible to keep on a diet and it might even cause people to gain more weight back than they lost.
The theory behind this is that your body has a set point or settling point for what it thinks your weight should be. When you are overweight, the set point changes to a higher weight. When you lose weight, your body wants to get back to this higher set point. The set point can be changed to a lower weight, but that might take years and years. There also is some limited evidence that building more muscles might help somewhat.
I think it is important to add this to the discussion, as often there is the idea that weight loss is just based on self-control and limiting calorie-intake. While this might play a role, the idea that these are the only factors that determine your weight causes a lot of suffering for people. It might also cause more weight gain in the long term.
So, try to lose about 10% of your weight and if you feel like you are struggling after that, go to a specialised doctor who can help you with losing more weight (doctors without this specialisation are often clueless about weight loss in my experience). In addition, a psychologist might be able to help if your are overeating due to an eating disorder.
I agree with that. Part of the point that I was trying to make is that when you only consider IQ, you have a very narrow view of intelligence.
When you consider intellectual giftedness, there are some definitions that just say you should have an IQ of above 130. However, there are also psychologists who consider it more like a complex syndrome with many attributes of which IQ is just one. The psychologist who worked with me had the latter view.
The ‘diagnosis’ of intellectual giftedness helped me to understand myself better and to understand some of the issues I have. It explains how and why my brain works differently from most other people and why I run into problems sometimes because of that. That helps me to deal with it better. So, it can be important for people to know about their intellectual giftedness in the broad sense and it should not just be ignored in all cases.
I do not think I view myself as belonging to an IQ caste or something like that. The word ‘caste’ suggests a hierarchy between people based on IQ. I disagree with that and I think people should not be considered worth more because of their IQ. However, at the same time, I tend to feel very bad about myself when I feel I am dumb. So, there is a bit of a discrepancy there between thinking and feeling that I need to work on. I should apply the idea of equal worth not only to others, but also myself, which I am working on. Apparently, I cannot just reason that feeling away.
I am intellectually gifted (officially diagnosed by a psychologist and psychiatrist) and 90% of the time I feel like I am very dumb. The other 10% of the time I feel like other people are very dumb. That is why I did not believe I was actually gifted for a long time. Apparently, smart people are sometimes more aware of mistakes they make and things they do not know, which can result in them feeling dumb.
Additionally, I am actually a quite dumb with practical stuff. It is boring, so I cannot concentrate on it and then I mess it up. I think that is also quite common.
I do not think it is that black and white. IQ is just one way of looking at intelligence. If people are walking around feeling like everyone is dumber than they are all the time, they either have a very narrow view of intelligence, or they might lack self-awareness considering their own weaknesses.
Yes, little brother vibes are good vibes. 👍
I think the person who thought I was an AI explained it quite well. Thet said they just got jaded. However, they believed me when I told who I was and apologised. I appreciate it when people are able to revise their idea and it shows they did not have bad intentions.
I would not say people are crazy, there is a lot of manipulation going on on the internet by businesses and some governments. I think a lot of people fall for bots all the time. For example, Twitter and Reddit is full of them. So, I do not think it is that weird that people sometimes are not sure whether they are talking to AI.
What happened to you when you even showed pictures of yourself and they still were convinced you were AI is quite extreme. I hope that that does not happen too often, because that seems like the other person is either a troll or paranoid.
Thank you, I appreciate that very much. I try to be accepting of other ideas and to be understanding. But sometimes it is difficult for me too. Especially if I get many negative reactions and I do not completely understand why (I do not mean you, but some of the other people that responded to me). Then I get defensive as well, even though I try not to be.
Your work sounds nice and very useful! As a researcher, I know a lot about a very small set of subjects. Sometimes, I am wondering whether I am actually contributing enough and whether what I am doing is actually useful. When you are building homes, at least it is very clear who you are helping and how they benefit from it. I would not be able to do it. I have two left hands, as we say in my language. I am not good with the practical stuff, I am only good with theory.
In any case, thank you for the discussion. I checked the gut microbiome out a little bit already and there is a lot of scientific work on it. Very complex and very interesting! I am looking forward to delving into that. I hope you have a nice day (or evening depending on the time where you are).
Yes, definitely. I did have a lot of symptoms of trauma as a child, in hindsight. This provided an explanation for that in which my parents weren’t blamed for it and it was just all on me again.